Friday. Ish.

I really am a bit rubbish at this, aren’t I?  I forgot to blog again.  So I’m going to pretend it’s still Friday and this post totally counts.  Because actually I didn’t so much forget as get hit by the nap truck in the afternoon, and I only just woke up again a little while ago.

Anyway, my psych appointment went alright, I think.  No more med increases needed.  I’ve got a leaflet / listing for some courses that they’re running in things like sleep hygiene and anxiety management – CBT and things along those lines.  Hopefully I’ll be able to do one or two of those.

Right now though, I’m going to go and get some more sleep.

Accidental week off.

Or nearly a week, anyway.  Six days.  I completely forgot to blog at the weekend… and managed to carry on forgetting all week until today.  Whoops!  So I’ll extend my blogging an extra week, I think.  Or maybe I’ll keep going until the end of July.  I’ll aim for that.  And beyond, of course, but hopefully every day until then.

So, what have I been up to this week?  Not a lot, really.  Much the same as I have for the last few months.  That’s mostly involved not going out a lot.  I don’t actually remember the last time when I managed to leave the house by myself, either.  Not counting letting the cat in and out, and putting the rubbish out – somehow that doesn’t seem to count as Going Out in my wonky brain, even though if I want to go somewhere further than the end of the garden path I haven’t made it past the flat door.  Make sense of that!

I had to go out today, and will again tomorrow, as I have an appointment with my psychiatrist in the morning.  Mum has been brilliant about coming over and helping me get out / taking me places.  Today was an appointment at the Jobcentre to talk to them about work and things now that I’ve been moved onto the new ESA benefit.  In my case, that was pretty much going over the fact that, what with not being so well, I can’t do full time work, but I can continue with the (part time) Permitted Work scheme.  So that’s OK.  What was less OK was the panic attack part of the proceedings, but it wasn’t a major one and I think I’ve remembered everything alright.  If not, I can ask Adam-the-support-worker who was there with me.  Mum had just dropped me off there, as Adam knows the ropes for this kind of appointment.  But she will be coming in to the appointment tomorrow, as per usual.  Her perspective is useful, but she can also remind me of anything I forget to mention as well.  Two heads are better than one, and all that stuff.

And on that note, I’d better go and make my list of things I have to remember for tomorrow.  Oh, and wipe my phone ready for taking it back to the shop for repairs.  Poor wee thing.  (No phone?  How will I cope?! Noooooo! etc)  Good night!

On: Manic Depression « squeegee182

An excellent post on what not to say to people with manic depression / bipolar:

On: Manic Depression « squeegee182.

I think I can count myself pretty lucky that it’s been a long time since I’ve had any of these things said to me.  It makes me realise how awesome my friends and family are, and how much their (your!) efforts to understand really help me.  Thank you all! ♥♥♥

Bipolar Awareness Day 2012

Bipolar UK is the new name for what used to be called MDF: The Manic Depression Fellowship. I think the new version is more succinct, don’t you?  They’re launching a campaign which will hopefully become an annual event:

A public education campaign, Bipolar Awareness Day will be launched on Wednesday 27 June 2012 by Bipolar UK, the Royal College of Psychiatrists and Bipolar Scotland.
– Quote from Bipolar UK

Approximately 1% of people in the UK have bipolar – that’s 1 in every 100 people, remember.  So even if you don’t have a close friend or family member who’s affected, it’s very likely that someone you’re acquainted with – a work colleague, or someone you went to school with – is living with bipolar.

Bipolar UK are planning to focus on one aspect of the condition every year.  This year it’s the fact that most people take around 10 years to receive the correct diagnosis.  That was certainly the case with me.

Anyway, go and check out their shiny new site if you’re interested, and find out some more information about the campaign there.

Time to Talk

I’ve made a pledge on the Time to Change website:

“I pledge to help end mental health prejudice.  I will talk about my own experiences with bipolar disorder and anxiety to help break down stigma.”

The project is not only for people with a mental health condition – it’s for friends, family, professionals, and anyone interested in the issues, really.  So check it out!

One Month Before Heartbreak

Unfortunately I haven’t been able to wrangle my brain to write a proper post of my own on this subject, but I urge everyone to go and read through the posts and links at One Month Before Heartbreak.

One Month Before HeartbreakJust to give you a bit more info, it’s a “blogswarm” event, where many bloggers post on the theme of disabilities and the UK disability-related benefits system between 14th and 16th January ’11.  Those dates have been chosen because the current consultation on DLA reform ends on 14th February this year, and frankly, it’s not looking cheerful.

As yet, I haven’t looked in detail into how any reforms might impact on me, and I’m trying not to be too pessimistic about it before I know for certain.  It’s not easy though, and I’m definitely nervous.  Deep breaths!

Typing + tiredness = not working

Since I’m extremely tired today (I have new medication which is making me drowsy, hopefully just for the adjustment period, and every time I sit down somewhere relaxing I drop off!), I’m not going to say much again.  I haven’t managed to finish the shawl yet, but just have the cast off edge to go.  I’ve been setting the twist of some of my handspun:

Setting the twist
Setting the twist

(excuse the rubbish photo), and also marvelling over how the Xandermog can go from FULL ON PESTER mode to fast asleep, you-can’t-wake-me in under five minutes flat.  Still when the result is this little face:

Xandermog on the sofa today
N'awwww!

how can you complain?

N is for Nothing Much

I seem to have hit the mid-month blogging slump.  Although on the plus side, I’ve also reached the middle of the month and I’ve blogged every day.  Hooray!

Today I went to the Bipolar group / course.  Looks like it’s going to be good, and a nice group of people.  It’s a sort of self management and education course, rather than a support group.  There is one of those, but it’s down in town on a Wednesday evening – that clashes with KnitJam some weeks, and anyway there aren’t any buses after about 6pm.  Which is a bit rubbish.  So anyway, I haven’t been along to that, and I probably won’t.  I’d rather be knitting ;-)

I still haven’t quite solved the problem I was having with the Ravelry progress bars, but it’s near enough so I’m going to stop being so picky now and leave it.  Time to go back to knitting, I think, or possibly spinning.  Although right now, I’m off to bed.

C is for (The) Crazy

Or to be a little more politically correct, (my) mental health.  I don’t have all that much to say about it, really, but I suppose it has been the reason for my sporadic posting over the ten months or so.  I started the long slow slide into a depressive phase probably in last August, but because it was gradual (and not constant), I didn’t notice for a while.  It wasn’t much fun towards the end of last year, but this year I’ve been gradually picking up again, and I’ve been feeling properly myself again – it’s funny how you don’t notice that you weren’t until you suddenly are again – since some time in April.  Hoorah!  I have a really nice new psychiatrist (the previous one moved on to a neighbouring area) too, and I’ve been getting other support from the community mental health team which has been an enormous help in getting back on my metaphorical feet.  In summary, I feel better, and I’m looking forward to the Bipolar Group course that’s starting next week, which is a self-management and education … thing.  It’s going to be useful.

Today’s NaBloPoMo prompt is: Define “freedom”.

Hmmm.  Freedom is… standing near the sea on a stormy day, salt on your lips from the wind whipping off it strongly enough to almost blow you off you feet; just jumping in the car (or on the bus, or on a plane) and going; living how you want to live; most importantly, freedom is being able to make your own choices – whether by yourself or in conjunction with others, as long as you choose the method – voice them, act on them, without persecution or oppression.

So yeah.  I guess C is also for Choice.

Blogathon – sponsorship open til Friday

I’m all recovered from the Blogathon now, having got lots of lovely sleep Sunday night!  I’m delighted to report that my sponsorship total is approximately £71 (I’ve been sponsored in pounds, euros and dollars, variously) – so far, that is.  Because yes, it’s still possible to sponsor me – pledges are staying open on the Blogathon site until Friday.  So if you want to chip in, just click the banner below.  It’d be nice to top £100, after all ;-)

Blogathon.org - click here to sponsor me by Friday 31st July(All you have to do at the Blogathon site is sign up to sponsor me, you’re not paying anything through them, or to me: sponsors will be sent the details to send donations through the MDF website after Friday)

As for the rest of the bipolar related topics that I was planning to blog about during the ‘thon, but didn’t get around to (note to self for next time: choose quicker things to write about!!), I still intend to post them.  I’ll just be spacing them out a little more.  They’ll probably be quite long, but I’ll remember to use the “more” tag when I’m not in such a rush to post.

48: Q&A – Experiences with diagnosis

lunamorgan asked “What was diagnosis like? How did you get it all sorted, because from what I’ve heard, it’s really hard to get a proper diagnosis of bipolar, what with most people not seeing doctors during manic phases.”

There were stages to my diagnosis, and it probably didn’t help that I moved from Beverley into Hull a couple of months after I first saw a my GP because I was disconnected and depressed.  Well, it did and didn’t help: part of what kicked the depression off was that I wasn’t happy in Beverley, so moving to my new place kind of helped that… but I digress already!

In October 2001, I went to see my GP, ostensibly because I’d strained something in my hand, I think, but also because I was bursting randomly into tears on the train home, feeling completely disconnected from everything, apathetic… all the classic symptoms of depression.  My GP was absolutely lovely, very sympathetic, talked me through it all, and prescribed me Prozac.  I don’t think he asked any further questions which would have indicated symptoms of mania as well… but if he did, I didn’t answer them correctly because I was depressed at the time, not really clear in the head – and at any rate, I’d never realised that the symptoms of mania I had were a problem.  Even the serious hallucinations and paranoia, for some reason.  I conveniently forgot about all that once I wasn’t going through it any more.

Anyway, although I felt weird about being diagnosed with clinical depression – unsettled, worried, unsure what it all really meant – I think it helped me just knowing that there was something “real” wrong with me.  The Prozac was also somewhat helpful, though it did make me pretty groggy and slow (mentally) a lot of the time.  I decided to move out of where I was living and get a place in Hull, nearer my work.  Everything was going to be rosy.

Of course, it didn’t quite work out like that.  Within a couple of months, I was manic, and not in a good way.  I now know that being on the anti-depressants was only helpful while I was depressed.  With nothing else to counteract them and keep my mood from going to high, it shot straight past the on-top-of-the-world mania I’d had when I moved, and into hallucination territory again.  Really, I guess I was in a mixed state, because I was also freaked out about leaving the house, and I also now now that I tend towards anxiety and agoraphobia when I’m down.  Fun times!  It all came to a head when I was due for a doctor’s appointment at the GP I’d transferred to, and I was having hallucinations that the buildings around me were moving and changing (rather like in Dark City, only in the daytime and with a tragic lack of Rufus Sewell).  This was, I’m sure you understand, frightening and creepy as all hell.  I was late to my appointment.  The receptionist told me I’d have to go away and make a new one for another day.  I went outside… and had an enormous freak out of truely epic proportions.  Let’s just say I was a bit hysterical.  I got to see the doctor that day after all.  I was scaring the other patients.  And myself, because I couldn’t stop.  I don’t do public displays of extreme emotion, in general.  Well, not ones that include hysterical crying and injuring myself.  Thankfully, this has been a one off in my life so far!

Anyway, the point is, I saw the doctor, and he referred me to the mental health services and gave me a sick note.  It took a couple of months for me to get my first appointment, during which time I was off work and mostly living on my sofa from what I remember.  The very first appointmetn I has with the psychiatrist, she diagnosed me with bipolar.  I didn’t believe her.  I thought she’d just picked it out of a hat because I was creative / musical.  I was actually probably displaying clear symptoms of being in a mixed state in that appointment, with hindsight.  I was prescribed some anti-psychotics (to help with the mania and anxiety) to take alongside my anti-depressants (which had been changed to Venlafaxine by that time), but they violently disagreed with me breathing, so I only ever took the one dose.  Next appointment, she put me on Depakote instead, which I’m on to this day.  It took nearly a year, but finally I came to terms with the diagnosis when I started recognising manic episodes.  It was knowing what to look for, and also having friends on LJ who were bipolar talking about their experiences which made me see it.  One day I went to my appointment and said “I think I’m manic today”.  My psychiatrist smiled and agreed.

46: A bit more on “normality”

Following on from my last post, I thought I’d just write a quick one (I hope!) covering what’s “normal” and not when you have bipolar.  In my experience, that is.

As I said before, “normal” is when you can function.  But in a way, that’s a reasonably wide definition of normal, and you could be in a manic or depressive phase while still meeting the criteria for being normal in that case.  If you’re want to define “normal” as “not manic or depressed”, how would you do that? (I would actually call that “stable”, rather than “normal”, probably because normal is such a fuzzy label, but anyway.)

I think perhaps being manic or depressed means that you’re not in control of your moods or emotions any more.  You can’t “just snap out of it” or “cheer up” or “calm down”.  Your brain chemicals are out of whack, and you’re stuck on that rollercoaster until something happens to stop it.  That could be outside intervention (from medication, to therapy, to just someone letting you know that you’re not well – because sometimes you can’t tell yourself ), it could be a sharp mood swing in the other direction, or it could be that you are able to put coping mechanisms in place yourself and start to haul yourself out by your bootstraps.  So yes, it is possible to take control back if you catch the mood swing early enough, or at the right point when you’re going back in the other direction.  Cognitive Behavioural Therapy helps you do that.  The meditation that I spoke about earlier is one of my coping strategies.  Getting it out of my head and into paper or screen is another.  Knitting and spinning are another.  And getting out of the flat and socialising is a very very important one.

Perhaps one of the problems with bipolar is that when you’re manic, it’s very easy to “fake normal”.  Everything’s brilliant, you can do anything and everything right now if you’re at the “right” stage of mania.  And it feels good.  It’s actually harder to admit to mania when everythings awesome like the awesomest thing ever, than it is to admit to depression (which can be pretty hard if you can cope with talking to anyone!).

—————-
Listening to: KT Tunstall – Miniature Disasters
via FoxyTunes

45: Q&A – How do we know what’s “normal” and what’s not?

Ptyx asked me: How do we know what’s “normal” and what’s not?

Before I got started answering that, I thought I’d better make sure I understood what she was asking, since there were a couple of different ways I can see to come at it (How do I know when I’m “normal” instead of in the grip of a manic or depressive phase; or how do we define normal as opposed to not?).  When I asked her, she replied: “The question was mostly general, that is, the second option: how can someone tell who is normal, or what behaviour is normal? I think the first option is part of the problem, too. But I guess that, before deciding if someone is behaving normally, we have to decide what is normal and what’s not.”

I think my answer to that will have to run very much along the lines of something my psychiatrist once said to me.  To give some background to that conversation, I’d been having what I like to call mild “reality issues” – and yes, I have degrees of reality issues, but when I’ve had the most severe ones, it’s been when I’ve been the most ill – so Mum was concerned that I might be heading in that direction.  Which is very bad no good stuff.  Anyhow, I’d been having some very vivid, lifelike, repetitive dreams.  Repetitive in the sense that I went to the same place every time: what happened wasn’t the same.  My sleep was a bit all over the place, so it all seemed a bit dreamlike when I was awake too, so it was making sense to me that both places were equally real.  YMMV.  However, in general, I was doing OK.  I was sleeping every day at some point, I was eating and going out, I was getting other things done.  There was just the risk that I might end up going too high.  So, I went to see the doctor, and after going through it all with me, he asked if it was distressing me?  No, it wasn’t, because the other place was perfectly nice and interesting, just different to here.  Was it stopping me from functioning when I was awake – taking care of myself, eating, socialising?  Nope.

In that case, he said, it doesn’t matter.  Don’t worry about it, just carry on as you were.  Make sure you keep taking your meds, keep track of your moods, and if it gets worse: becomes distressing, stops you functioning, makes you do things that are risky to yourself or others; that’s when there needs to be further intervention.

So I think that’s become my definition of “normal”.  Able to take care of oneself and function safely and well in society. Does that make sense?  I can be manic, I can be depressed, Person X can be a bit eccentric, Person Y can be schizophrenic, and so on, but if we’re all doing well enough that we’re not doing ourselves or anyone else any damage physically or mentally… then that’s “normal” enough for me.

“Normal”, of course, is just as much a  label as anything else.  And it’s a subjective thing – different people will have different definitions.  Often, that definition will be “like me”.  That’s too restrictive for me.

Once again, I’ll point you to Cia’s post on the subject – it’s a good one!

—————-
Listening to: Florence And The Machine – Dog Days Are Over
via FoxyTunes

43: The Elevenses Post

Which means that I’m not only one post behind.  Hooray!  Unfortunately, I can’t think of anything to say for this one.  How’s everyone else getting on?  I was really sorry to see that Renee had needed to get some sleep, but I completely understand why – I was beginning to worry if I might have to do the same thing because I didn’t want to risk making myself ill, pushing myself into a manic or depressed, or mixed-cycling phase through lack of sleep.  Or really, because my sleep routine was messed up.  I’m pretty sure now that I will in fact be OK, and I’m likely going straight to bed at 2pm and I dare say I’ll sleep til morning.

And wow, talking of Elevenses, I’m suddenly hungry again.   Toast, anyone?

41: A knitty post

Since I don’t think I actually posted here when I finally finished Mum’s birthday shawl, I shall do so now!  I was almost a year late giving it to her in the end, so instead of it being finished for her birthday in April 08, it was finished for Mother’s Day in February 09.  The border had taken me *so* much longer than I anticipated, and then I had blocking anxiety so it took me ages to screw up the courage to do that in case I messed it up!  But the finished result was worth all the work:

Actually, I don’t think I ever put put the project stats here for this, since it was Sekrit Knitting, so here they are now:

Pattern: Wild Flower Shawl by Dee Bamford. [Ravlink]
Yarn: Posh Yarn Sophia 2ply (100% cashmere) in ‘Strawberry Shortcake’.
Needles: 3.25mm circular (Addi Turbo bamboo)
Ravelry Project Page: WFS

And would you believe, this shawl is now almost-famous?  Our knitting group was in the Readers Projects section of The Knitter magazine, issue 7, and this shawl was one of the ones we sent off to them to feature.  Hee!